Comprehensive Web Sites Down Syndrome: WWW Page Riverbend Down Syndrome Parent Support Group Down Syndrome Information Network Sara G’s “Being Into Down Syndrome” Page Uno Mas! (Temecula Valley DS Group) Downscity Homepage
U.S. Local Organizations Northeast Aim High! (Albany, NY) Bringing Up Down Syndrome (Southern NJ) Connecticut Down Syndrome Congress Down Syndrome Parent Network (E. Penn) Down Syndrome Support of Genesee County (NY) Down Syndrome Society of Rhode Island Massachusetts DS Congress Trisomy 21 of Northern New York
Southeast ARC Broward DS Assoc. of Atlanta Down Syndrome Assoc.of Middle Tennessee Down Syndrome Assoc. of New Orleans DS Broward.org DS Family and Friends (Little Rock, AR) Down Syndrome of Louisville, KY Family Network on Disabilities of Florida, Inc. God's Little Acres Gold Coast Org. of Palm Beach County, FL Hope Haven Children’s Clinic and Family Center Lindsey Rae Foundation (Broward) Parents of Children with DS (PODS) of N. Virginia Piedmont DS Support Network (N Carolina) PODS Angels Support Group Foundation, Inc. Special Olympics Florida Triangle Down Syndrome Network (N Carolina) Up With Downs (Shreveport, LA)
Middle Down Syndrome Assoc. of Central Ohio Down Syndrome Assoc. of Central Oklahoma Down Syndrome Development Counsel (N. Illinois) Down Syndrome Assoc. of Greater Cincinnati Down Syndrome Assoc. of Minnesota Down Syndrome Assoc. of West Michigan Down Syndrome Assoc. of Wisconsin F.E.D.S. (Sterling Heights, Mich) Indiana DS Foundation (Indianapolis) Miami Valley Down Syndrome Assoc. (Dayton, OH) Oshkosh Down Syndrome Parent Support Group Riverbend DS Parent Support Group (SW Illinois) The Up Side of Downs of Greater Cleveland Up With Down (Des Moines)? Wichita Downs Support Group
West & Southwest Down Syndrome Assoc. of Houston Down Syndrome Assoc. of Los Angeles Down Syndrome Connection of Tucson Down Syndrome Exchange, Southern CA Down Syndrome Guild of Dallas DS Network (Phoenix, AZ) Down Syndrome Organization of Southern Nevada Down Syndrome Partnership of Tarrant County (Ft. Worth) Down Syndrome Support Group of the High Desert Down Syndrome Assoc of Ventura County (CA) PROUD (Orange County, Cal.) Sharing Down Syndrome Arizona
Rocky Mountain/Northwest Colorado Springs Down Syndrome Assoc. Down Syndrome Outreach of Whatcom County (WA) Mile High Down Syndrome Assoc. (Denver area) Upside! (Wash.) Utah Down Syndrome Foundation
Intercontinental US Alaska Chapter of the NDSC
Online Magazines and Newsletters Down Syndrome Quarterly (a multi-disciplinary journal) Disability Solutions Down Syndrome Amongst Us
Medical Resources Medical Descriptions of DS A description of Down Syndrome characteristics by Dr. Siegfried M. Pueschel Online Mendelian Inheritance in Man (OMIM) Page on DS (a medical description)
General Health Guidelines Health Care Guidelines for People with DS Spanish Edition of DSMIG Guidelines Down Syndrome: Health Issues, from Dr. Len Leshin
Genetics of DS Dr. Korenberg’s Chromosome 21 Phenotype Mapping Project Online Mendelian Inheritance in Man (OMIM) Gene Map of chromosome 21 Risk and Recurrence of Down Syndrome by Dr. Paul Benke What is Mosaic Down Syndrome? by Carol Strom Animations of Meiosis and Fertilization
Specific Medical Topics in DS Center for Motor Behavior in Down Syndrome Dental Care in Down Syndrome: A Review of the Literature by Sindoor Desai, DDS Down Syndrome & Autistic-Spectrum Disorder Down’s Heart Group Growth Charts for Children with Down Syndrome Menstrual Management in Down Syndrome Hip Instability in Down Syndrome by Kim Voss Alzheimer’s in DS by Dr. Ira Lott My Brother and Me: about Down Syndrome and Alzheimer’s
Other Resources for Parents Breastfeeding and Down Syndrome, by the La Leche organization Communicating Partners, Dr. James McDonald’s program Diagnosis: Down Syndrome (a collection of stories for new parents of children with DS) Down Syndrome - For New Parents (by The Paul Family) Love and Learn Tapes for Teaching Reading National Down Syndrome Education and Research Institute Parents’ Resource - For new parents (by the Edwards Family) Welcome to Holland, by Emily P. Kingsley Welcoming New Babies, by Pam Wilson
Other Great Sites Adult Artists with DS Chris Burke Fan Club Website Sujeet Desai: Pianist Extraordinaire Michael Jurogue Johnson: a painter and illustrator with DS Raymond Hu’s Website: his story and paintings Erik David Behnke: An Alaskan Artist Jane Cameron, Sunshine Girl
The Marketplace “Beautiful Faces” Calendars and Note Cards Sign Language Rebus Books for Children with Special Needs TLC Kids Company: educational materials for children with disabilties Special Fit Online: Clothes for adults with DS Time2Read is educational Internet software Baby K'Tan Carriers
